We finally got to hold him!! After 2 VERY long weeks!! I held him this past Friday and Trev held him Saturday and now we both hold him everyday as long as we each can! It feels so amazing to hold him in our arms! He gets so cozy all warm and snuggled next to us. We are starting to give him a bottle but he doesn't eat much from it. He is breathing so fast that it's hard for him to take drinks in between breaths, plus it takes so much of his energy just to breathe that he doesn't have a whole lot left to feed. And he doesn't quite know how to do it either. He just holds it his mouth with a look like- What do you want me to do with this? And when he gets milk in his mouth he's not quite sure what to do with it either. He kinda lost that sucking reflex and will have to catch up. Hopefully he will catch on soon!
So now the big goals are to get him to start taking a bottle better and to wean him from his pain pump. He is getting a continuous dose of pain medication (fentanyl) but they have to decrease it very slowly or he will go through withdrawals. He was kinda fussy all afternoon and I wonder if he is starting to withdrawal. It is hard to see him go through such hard things. Very hard. Especially cuz there's nothing we can do to help him with it. It makes me cry just thinking about all the tough things he's going through when he is so tiny and fragile. I don't want him to be in pain or be uncomfortable or feel alone or lost. I hate leaving his side. I just wish I could take it all away... give it to me cuz I know I can handle it. That's what I pray for anyway. So please keep him in your prayers too! And thanks for all your love and support!
So now the big goals are to get him to start taking a bottle better and to wean him from his pain pump. He is getting a continuous dose of pain medication (fentanyl) but they have to decrease it very slowly or he will go through withdrawals. He was kinda fussy all afternoon and I wonder if he is starting to withdrawal. It is hard to see him go through such hard things. Very hard. Especially cuz there's nothing we can do to help him with it. It makes me cry just thinking about all the tough things he's going through when he is so tiny and fragile. I don't want him to be in pain or be uncomfortable or feel alone or lost. I hate leaving his side. I just wish I could take it all away... give it to me cuz I know I can handle it. That's what I pray for anyway. So please keep him in your prayers too! And thanks for all your love and support!
