Saturday, October 8, 2011
Surgery
so surgery went well! they were able to push everything in & make his belly flat! he looks incredible! but he wasnt doing so good breathing after surgery with all that pressure in his belly (its basically like hes wearing a super tight corsset!) so they kept the breathing tube in, which was one of my biggest fears of him having the surgery- i hate to see him intubated & he hates being intubated! so that made for a really bad night! they wanted to keep him pretty sedated so that he wouldnt fight the vent too much but he kept waking up & thrashing around. he needed a lot of meds to keep him sedated- hes built up quite the tolerance to these meds from being on them so long in the nicu. so i got pretty much zero sleep. & the connectors on his iv kept coming apart so we would check him after an hour or more & his bed would be wet- meaning his pain medication (fentanyl drip) would just be going onto his sheets. so he would miss out on all that medication & wake up too often. & then he had issues peeing.he was only peeing tiny tiny amounts so they gave him a bolus of iv fluids to hydrate him more but he would still only pee a little. so now hes all swollen cuz he basically retained all that fluid in his tissues. & then of course he was stingy with his blood just like he was in the nicu so every time they needed to draw blood from him it was a big ordeal- it would take multiple pokes just to get the tiniest amount of blood. but we finally made it through the night. & through out the night they were turning down the breathing tube so he was slowly doing more breathing on his own. so ithis morning they finally took the breathing tube out... & it couldnt have come soon enough! & then he had his poor little raspy voice that just breaks your heart! that really is the saddest cry you could ever hear! but its getting better now. now he just sounds like he has a wicked sore throat. & then we finally got to start feeding him this afternoon & hes doing pfetty good so far!they just want to do small amounts more frequently so his belly doesnt get too full & distended. so we will have to go very slow increasing the amount until he can eat like normal. & so far he doesnt look like hes in too much pain. hes awake & squirming around almost like his norml self. we gave him tylenol once & that pretty much looks like it did the trick. so hopefully we wont have to use too much heavy pain meds cuz they constipate you & thats the last thing his poor little guts need. so we will prolly be here a few more days so they can really make sure everything is good with him. we really appreciate all the thoughts & prayers coming our way! they are helping tremendously! ill try to put up pictures when i get a computer (right now im on my phone). thanks again for all the love & support we feel from everyone!