Thanks for all the prayers! They are helping a ton! He's doing way better than I expected!! He's drinking around 3-4 oz every 3-4 hours. By the end of the day he usually drinks at least 80% of what he is supposed to. & he's getting kinda fussy when he's hungry- giving us some hunger cues he hardly ever did before. & he hardly ever pukes anymore! & he doesn't choke and gag like he used to! I honestly think the tube irritated him more than we thought! We thought he was having all these issues because of his omphalocele but many of them have cleared up since the tube is out!! He's almost like a normal baby! Cordless and everything! Now we just have to work on increasing the volume. We weighed him and in 1 week he only gained 1 ounce... which is not very good at all considering he is only in the 2nd percentile in weight right now. But I guess on the positive side he didn't loose weight which is what I was afraid he would do. So we are just gonna keep it out and see how he does. We have an appointment this Wednesday to start feeding therapy so hopefully they will be able to give us some exercises and hints what we can do to help him eat better and eat more. Maybe then we can get rid of the bottle and the thickened milk and start breastfeeding. Maybe someday!
